I've been following a forum for a while now, details are as follows: http://www.hygen.net/hydrops-fetalis/viewforum.php?f=3
I'ts a great source of information and support - all of which is given by families who have gone through similar situations to mine. It is also a good source of hope and there are some success stories on there too.
I really hope you take a look at this forum, it's great!
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